We’ve Been Expecting You.
You found us…finally. The search ends here.
HS Connect is the largest patient-led advocacy group for HS.
We work hand-in-hand with dermatologists, researchers, and pharmaceutical partners to make sure HS patients are seen, supported, and validated.
Here, you’ll find real answers, real resources, and real people who get it.
We’re taking HS Mainstream.
We’re not hiding anymore.
We’re not ashamed.
Made possible by:
Welcome to the Club
You Never Asked to Join.
HS Sucks, we know. Because we live it too.
HS Connect is founded and led by HS patients, just like you.
We’ve been where you are:
searching, confused, frustrated, and tired of feeling alone.
Here, you’re part of a community that’s been waiting for you.
Ready to get started?
We’ve built interactive quizzes to help you skip the overwhelm and head straight to the resources that matter most.
Choose the path that fits you best.
Think of this as your choose-your-own-HS-adventure:
Not sure if you have HS?
Take the “Do I Have HS?” quiz.
Already diagnosed?
Jump into the “What’s Next” guide.
Supporting someone with HS?
Why Times Square?
Hidradenitis Suppurativa has lived in the shadows for far too long.
Many of us have carried this condition in silence for years, sometimes decades, before finding answers.
On average, it takes 7-10 years to receive a diagnosis.
While we encourage everyone to seek medical care (see our Dermatologist Finder), we also know too many patients have faced dismissal or mistreatmentwhen asking for help.
That’s why we chose Times Square; the biggest stage in the world.
We’re bringing HS out of the shadows to find those who’ve felt lost, unseen, or alone.
We see you.
We get you.
We got you.
Join Us
I told the HS WARRIORS I would attend the next HS event, if they were my back up dancers. #findus25 #hsconnect #caregiver #dancers #hswarriors #hidradenitissuppurativa #backupdancerchallenge
Infusion for HS
#hidradenitissuppurativa #hidradenitissuppurativawarrior #chronicpainawareness #
#findus25
💟 #findus25 hsconnectorg hands-on advocating with the most powerful patient advocates & models 💪🏽❤️
So proud to stand with:
hannahbrookssss HANNAH
blu_hefner1015 JAWAN
thatfatdoctor KATELYN
jaazzmary JASMINE
hsopenwounds PARISH
socialcydd CYDNEY
l.e.i.a.u.n.p.l.u.g.g.e.d LEIA
bowtomyheart CHAQUIRA
bama_mario MARIO
callmedalton2 ASHLEY
modelplusme ME- Liz/Elizabeth Rozy Tassy winnietheboo331
beautyandhs KRISTINA
cristimadewhole CRISTI
kaitlynn616_
Founder +CEO brindley_brooks BRINDLEY
shining light + raising awareness together. 🌎🔥
Grateful. Inspired. Just getting started. 💖#hidradenitissuppurativa #hswarrior #hsconnect #hidradenitissuppurativaawareness #
Meet the 12 #hswarriors that walked the hsconnectorg #runway for the #findus25 campaign in Times Square last week. The details of our health journeys’ with #hidradenitissuppurativa are different but we all understand what #hs *tries* to take from us - and how important #community is. COME FIND US ❣️ hannahbrookssss HANNAH
blu_hefner1015 JAWAN
thatfatdoctor KATELYN
jaazzmary JASMINE
hsopenwounds PARISH
socialcydd CYDNEY
l.e.i.a.u.n.p.l.u.g.g.e.d LEIA
bowtomyheart CHAQUIRA
bama_mario MARIO
callmedalton2 ASHLEY
modelplusme ME- Liz/Elizabeth Rozy Tassy
beautyandhs KRISTINA
cristimadewhole CRISTI
kaitlynn616_
Founder +CEO brindley_brooks BRINDLEY
#findus25 #hidradenitissuppurativa #hswarrior #hsconnect #hidradenitissuppurativaawareness hannahbrookssss HANNAH
blu_hefner1015 JAWAN
thatfatdoctor KATELYN
jaazzmary JASMINE
hsopenwounds PARISH 🎶
socialcydd CYDNEY
l.e.i.a.u.n.p.l.u.g.g.e.d LEIA
bowtomyheart CHAQUIRA
bama_mario MARIO
callmedalton2 ASHLEY
modelplusme ME- Liz/Elizabeth Rozy Tassy winnietheboo331
beautyandhs KRISTINA
cristimadewhole CRISTI
kaitlynn616_
hsconnectorg Founder +CEO brindley_brooks BRINDLEY
Living life with HS can also be fun when you find a community 🫶💜🎶
#hidradenitissuppurativa #hswarrior💜 #HSCommunity #HSconnect #FindUs25 #livingmylifelikeitsgolden
Shout out to @inctye for their support of Find Us, the largest patient led Hidradenitis Suppurativa campaign. Thank you for coming out and uplifting our community. Folks, go check out their Truth HS website, it is very cool! You may see some familiar faces (wink wink).
#FindUs25 #Incyte #TruthHS #HidradenitisSuppurativa
Behind the song. Behind the runway. Behind the story.
Within one week, I rewrote lyrics, recorded vocals in Georgia, flew to New York, and watched my music come to life on a Times Square runway.
Two of my original songs — one about healing from abuse and one about battling chronic illness — became a mashup for the HS Connect Runway Show.
Seeing people walk proudly to those lyrics — showing their scars, their strength, their stories — was one of the most powerful moments of my life.
🎶 I am more than my condition. I will fight for my remission.
This is the heart behind the song. 💙
#BehindTheMusic #BTS #TimesSquare #HSConnect #HidradenitisSuppurativa #BodyPositivity #ChronicIllnessAwareness #Empowerment #MusicIsMySuperpower hsconnectorg #findus #findus25
#hsconnect #hsconnectorg
Enter Healing Space
With chronic disease, mental health care is essential. Explore our best resources right here.
Quiz yourself: Is it HS?
Wondering if you have HS? Answer a set of simple questions to get the answers you need now.
Join our community
We are a vibrant group that comes together to get real and share ways to live our best lives.
Shop our products
From washes and salves to tape and wound care attire, explore what’s helped the people in our community.
Find the Right Dermatologist
It’s a very important relationship
HS erupts in tender and private places, and having a dermatologist who makes you feel comfortable, seen and heard is really important. There is no one-size-fits-all approach to treatment, but the physicians on this list can be a good place to start.