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About HS Connect & Our Mission

Our Mission

To connect those who suffer from Hidradenitis Suppurativa with solutions, support, resources, suggestions, and helpful information for all dealing with this illness. We hope to further HS awareness, the study of HS, inform others of available studies, and share information regarding successful studies and opportunities; knowledge is power.

More About Us

Our team, Denise, Brindley, Ghazal, Roni, Kayla, Jillian and Lacy all have HS.  We are all HS and Patient advocates who devote their time, energy, and efforts into studying, researching and helping others with HS. Between the 7 of us, we have 40+ years of advocacy experience and 100+ years of living with HS. We created this organization to empower others to share your stories, allow your voices to be heard, and ensure you’re not living in silence. We are aware, first hand, of the toll this disease takes on one emotionally, physically, and mentally and love to encourage others in their journeys based on our experience and knowledge.

Our Why

We are passionate about sharing our stories and helping others with HS to navigate this disease physically, mentally, and emotionally financially.  We are working to eradicate the stigmas of HS and inform and educate as many people as we can through this website, organization, and other ventures.  Our goal is to get this website and education in the hands of all involved with HS, including dermatologists and surgeons, caretakers, spouses, kids, partners, parents, family, and friends.  We've hidden long enough, it's our time to shine.

What HS Connect Offers

HS Connect is run by our group of volunteers and features articles, clinical trials, surveys, stories of others, photos, and more. This information is gathered, researched, and shared by your HS advocates who donate our time to this cause. We pride ourselves on offering as many free resources as possible and do ask those who provide resources that are not free for a discount for the HS Community. HS Connect also pays, by way of donations, for some of the resources in turn offers them to the community at no cost. Most of our time and energy is spent on the following:

 

  • Working with dermatologists, researchers, scientists, virologists, biochemists, therapists, and psychologists

  • Attending HS and other educational seminars

  • Interviewing dermatologists, researchers, biochemists, therapists, other HS warriors 

  • Working with other HS organizations & advocates

  • Gathering years of HS statistics 

  • Writing resourceful articles

  • Developing, maintaining, and managing our HS support group

 

Goals of our Organization

  • Spread awareness to those who don't know and help educate those who are new to HS

  • Educate everyone, including physicians who are not knowledgeable in HS as well as other specialists who have first encounters in the medical field or interactions with HS in hospital or urgent care settings

  • To be a resource for loved ones when people cannot explain HS and the impacts on those who suffer

  • Giving warriors a platform to express themselves, tell their stories, share their pictures, talents, and share the most vulnerable parts of themselves they don’t feel safe to share elsewhere

  • Giving everyone with HS an opportunity to be a part of this forward momentum

  • Helping those with HS who don't have the means for medical supplies in a co-op of sorts

  • Future plans with the help of donations include paying for research studies we are not able to currently gain access to without funding and continuing to offer resources to the community

  • Continue to bring additional resources to the HS community

 

2021 Goals 

  • Mental Health

    • Offer additional resources, interviews and coping strategies

  • Pediatric HS

    • Engaging with Pediatric Dermatology clinics to interview and help spread the word about getting more providers to address the condition

    • Creating a list of Pediatric Dermatologists who treat HS in children​

    • Creating a support group for parents of children with HS

    • Continuing writing articles to help parents navigate the condition

  • Men & HS
    • Bringing light to the percentage of men impacted by HS around the world 

    • Providing resources and interviews for men
  • Reaching the Medical Community

    • Educating ER and Urgent Care physicians as well as OB/GYN providers regarding HS in order to educate them regarding HS in order to reduce the duration of onset to diagnosis

    • Engaging more ER, Urgent Care and OB/GYN physicians via webinars with HS Specialists

    • Sending HS Connect business cards and brochures out to all dermatologists who see HS patients as a resource

  • Nutrition

    • Working with a nutrition and registered dietitian on articles and to provide nutrition resources and education

    • Providing additional anti-inflammatory recipes

How Your Donations Help

  • Donations are always put back into the community including donating to other HS foundations, organizations, or HS warriors working to make an impact within the HS world 

  • Paying for our team to attend seminars, conferences, and training which keeps us up to date with the latest developments, researchers and treatment options so we can provide the community with the most accurate information

  • Providing HS Connect business cards to dermatologists as a resource for their patients

  • Shipping and handling, postage and stamps for giveaways, business cards, flyers, medical supplies for those in need, and more 

  • Preparation and printing of brochures to educate physicians and other allied health professionals and offer resources

  • Creating a Physician Information Exchange and offering resources to the medical field

  • Fund innovative online mental health workshops, sessions and other educational activities for our members

  • Provide scholarships for high school students with HS pursuing higher education

See who we have had the honor to work with and help recruit for HS, commercials, documentaries, medical articles, etc. HERE

SUBSCRIBE HERE!

© 2021 by HS Connect, LLC  |  contact@hsconnect.org  |  PO Box 73244 Puyallup, WA 98373  |  253.208.1216