PARTICIPATE LIKE THE FUTURE OF HS DEPENDS ON IT, BECAUSE IT DOES.
Clinical trials, research and surveys are open until the quota of participants is met or the study is concluded. We are consistently checking and updating this page. If you come across a study that is closed or no longer accepting participants, please let us know here.
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It is the responsibility of each of us with HS to participate in whatever studies, research and surveys possible to further the research and knowledge of HS for ourselves, friends and other warriors currently suffering and those who haven't yet been diagnosed.
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**Attention Researchers, Physicians, Pharmaceutical Reps or Sponsors**
If you are interested in listing your clinical trial, please contact us here.
StuffThatWorks
Who is StuffThatWorks and what do they do? Read more below. We are hoping do much more collaborating with them to help the HS community! You can take the Living through Covid-19 times with HS Survey too!
Ohio State University
Oral Health and Modifiable Risk Factors with HS
A survey studying what dietary or environmental changes might improve symptoms for patients affected by hidradenitis suppurativa.
University of California,
San Francisco (UCSF)
COVID-19 STUDY
If you, or your caregiver have tested and confirmed positive for COVID-19 with HS, please complete the study here.
Complement C5a Receptors in Hidradenitis Suppurativa
To study the role of C5a in Hidradenitis Suppurativa (HS). Complement C5a is a major chemotactic factor that stimulates neutrophil infiltration.
Study of Efficacy & Safety of Investigational Treatments in Patients With Moderate to
Severe HS
**PARTICIPANTS NEEDED**
The main purpose of this study is to assess preliminary efficacy and safety of CFZ533 and LYS006 in patients with moderate to severe hidradenitis suppurativa and to determine if CFZ533 and LYS006 have an adequate clinical profile for further clinical development.
Low Dose Radiotherapy for Advanced Hidradenitis Suppurativa (RTHS)
**TRIAL EXTENDED**
To establish the safety of radiotherapy in the treatment of advanced hidradenitis suppurativa. Patients will receive radiotherapy treatment over one week and then will be followed for the next three months.
Impact of Hidradenitis Suppurativa on Quality of Life Functions
**EVERYONE SHOULD PARTICIPATE**
The goal of this study is to get a better understanding of the impact of Hidradenitis Suppurativa (HS) on the quality of life of patients with this condition. Study participation will last for 1 day, with potential for follow-up in the future.
Epidermal Barrier Function With Anti-Oxidant Defense
Mechanisms in Skin Conditions
**PARTICIPANTS NEEDED**
Investigators will sample the skin and blood of patients with chronic skin conditions (including but not limited to atopic dermatitis (AD), contact dermatitis, hidradenitis suppurativa (HS), and psoriasis) to study the expression of anti-oxidative enzymes, skin barrier proteins and inflammatory molecules.
ISMIC (Target-Derm)
**PARTICIPANTS NEEDED**
5 year study for adult and pediatric HS patients. Various States. Click below for info.
Avacopan
It is a receptor inhibitor acting like a biologic and an immunosuppressant and was developed for both auto-inflammatory and autoimmune illnesses. They also have expectations that Avacopan can be used as an alternative to corticosteroids. It inhibits the complement C5a receptor, or C5aR, for inflammatory diseases. Avacopan blocks the activity of complement C5a, a component of the complement system and the for C5aR.
Wound Dressings for HS
University of Miami
How types of wound dressings affect quality of life for people with HS
NCT04194541
University of California,
San Francisco (UCSF)
COVID-19 REGISTRY
If you, or your caregiver have tested and confirmed positive for COVID-19 with HS, please complete the REGISTRY here.
HS Written Action Plan Trial (HSWAP)
The goal is to gain a better understanding of the condition and how to manage the condition on a daily basis compared to a routine verbal consultation.
Wound Care Trial in Ireland
Open to anyone in Ireland.
Volunteers are needed for a wound care clinical trial. HS warriors are needed to participate in this trial for HS wound dressing of the armpits.
Treatment of Hidradenitis Suppurativa With Eth 755nm Alexandrite Laser
**TRIAL EXTENDED**
Patients with bilateral hidradenitis in the axilla, groin and/or inframammary will be treated on one side with the Alexandrite hair removal laser. The other side will serve as the control.
Wound Etiology and Healing Study (WE-HEAL)
**EVERYONE SHOULD
PARTICIPATE**
The purpose of the WE-HEAL Study is to help researchers use human tissue samples and health records to study the reasons why some patients heal quickly and some have problems healing wounds. All patients seen with an open wound or hidradenitis suppurativa are invited to participate. Information from this research may help to understand how to prevent and treat certain diseases.
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Molecular Biology and Genetics of Hidradenitis Suppurativa
**PARTICIPANTS NEEDED**
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Analysis of Gene expression and microbiome profiling in hidradenitis suppurativa to identify immunological biomarkers of disease activity.
National Registry For Patients With HS
**EVERYONE SHOULD PARTICIPATE**
5 year study for adult and pediatric HS patients. Various States. Click below for info.
Risankizumab