HS Interview Study Opportunity!

HS Interview Study Opportunity

US Only | Web Interview | Ages 12-17 | Compensated

ACCEPTING APPLICATIONS FOR TEENS ONLY!

LIMITED NUMBER OF SLOTS!!

PLEASE REVIEW ALL REQUIREMENTS

Requirements for participation:

Teens: 12-17
Confirmed HS diagnosis
Hurley Stage 2 and/or 3
Must speak English
US only
Must have internet connection
Must be willing to be audio recorded
Must have written medical documentation noting a diagnosis of HS and your Hurley staging (mild, moderate, severe works as well) OR must be willing to have a video visit with a Dermatologist to confirm Hurley Staging. More below....

***IMPORTANT*** IF YOU DO NOT HAVE A NOTE OR MEDICAL RECORD FROM YOUR DOCTOR WITH YOUR DIAGNOSIS AND STAGING, YOU MUST RESIDE IN ONE OF THE FOLLOWING STATES IN ORDER TO PROCEED:

You aren't eligible to participate if:

You’re in a relapse/active/flare up phase of a diagnosed chronic immune-mediated, inflammatory condition(s) other than HS
You have an active or chronic infection requiring hospital treatment (antibiotics or corticosteroids) within 30 days prior to screening
You have a current severe psychological (e.g., schizophrenia) or cognitive disorder (e.g.,
Alzheimer’s disease) that would interfere with the ability to participate in the study
You are currently enrolled or has been enrolled in a clinical trial for HS within the last 6 months

Here's the process and what you can expect:

2 - 90 minute web interviews (these may be up to 9 months apart as they need to process the information to form the second interview).

IQVIA will conduct a screening call with the patient or caregiver.

If qualified, consents will be completed.

Provide proof of HS diagnosis and Hurley stage (mild, moderate or severe works as well) with medical records (scanned copy, photograph of medical record, etc. are acceptable)

If your medical record with your diagnosis of HS doesn’t indicate your Hurley stage (or mild, moderate or severe), we’ll arrange a virtual appointment with a Dermatologist on their secure platform. You’ll upload photos of your HS areas to a secure portal prior to your appointment and will be asked to confirm your identity and show and discuss your HS with the Dermatologist (many people can view their medical records online and a screenshot will suffice).

If a virtual Dermatology appointment is needed, the IQVIA team will work with the schedule of both you and the Dermatologist to arrange a virtual appointment. The virtual Dermatology appointment will last 15-30 minutes and the dermatologist will communicate your staging with the IQVIA team to confirm your ability to participate. PARENTS: If your child is under 13 you will need to be present for the virtual Dermatology visit.

IQVIA will reach out to schedule and carry out the 90 minute web interview.

Compensation:

$50 for providing confirmation of diagnosis and staging OR participating in the virtual visit
$185 for completing 1st interview (interview reimbursement of $185 + confirmation of diagnosis or virtual visit of $50 are paid within a few weeks of the first interview for a total of $235 for the 1st interview)
$185 for completing 2nd interview ($185 is paid within a few weeks following the second interview)

IQVIA will reach out to you 6-9 months after the 1st interview to schedule the 2nd follow up interview.

TO PARTICIPATE:

Email contact@global-patients.com with the subject line TEEN HS STUDY. Please include your phone number and name in the email so they can respond to you as quickly as possible.